Thursday, October 11, 2007

Back at Home...nOT aBLE TO POST!!!!

7 comments:

Amanda said...

Jonathan came home this morning. We had to move rooms yesterday and room with a 2 month old baby, they were full to capacity and had people waiting in the ER for a bed. So...I lost all chances to be online. The outlet was on the other half of the room. I did end up getting along well with the other mom and so that made it okay, but I wanted to read blogs, post pictures, email....oh well.
Things are rough with Jonathan right now. They have him on these awful steroids that are causing major behavior issues. He is jekyll and hyde. It is scary adn frustrating. I know he can't help it, but it is awful. He goes into rages and hits, kicks, pinches....says hateful, hurtful things and is so angry. I talked with the pharmacist and he said this is typical with the combo of medicines. Great. I can try some Benedryl he said. We'll see. I don't recognize my child when the rages hit. It is so scary. My mom took Luke and Caitlin and Amy has Gabe so I can be alone with Johnny tonight. I feel so helpless. He is on the meds until Monday and we go back to the dr.
I have cried all day, actually for the past two days. Nothing will set me off, it will just start. I think I am just so overwhelmed. His oxygen levels are stable, but not where they want them to be. Please pray for this little boy of mine.

Jamie said...

Poor guy, as hard as it is on you when he has the rages, he must feel bad inside too. I'll pray for him tonight. At least he knows you are there for him and will always be there for him. He may not be able to express it, but I'm sure that means a lot to him. I hope he can get through this and off those meds quick. It's horrible what side effects they can have on you. Just know that at 8:16 pm, Jamie is thinking of you, praying for you and sending well wishes your way.

Amanda said...

Thank you Jamie. That means a lot.

Cheryl said...

Oh I feel for you both. There is nothing worse than having your baby feel that way and not being able to help or explain to them why. I will pray for you both. We all get over whelmed sometimes, remember you are not alone!!

Crystal said...

OH my goodness, poor Johnny and poor you! I will pray for all of you right now. Try to be patient and maybe try to keep him occupied with something and maybe that will help. Maybe you can play a ton of board games or made up games with him to keep him focused on positive things. Daws loves to play the game, I see a color you don't see and he loves to play simon says, maybe if you interact that way it will help. I don't know but it's worth a shot. I love you to pieces and I am praying that your baby is in perfect health by Monday's doc visit!!!!

Carrie said...

Oh Amanda...I am so sorry. I don't know what to say. Except I will keep praying you will all get thru this time. You sure have had it rough....

Char said...

You could try sitting down with him and reading. I know that always calms my kids. It's a nice time to snuggle and calm yourself down as well.
I really hope the weekend isn't too rough!
I would be overwhelmed and tired and crying all the time too! It's ok! It'll be OK! :)